Rachel was a riot to watch. She was squaking and yelling. Frankly, I'm surprised she didn't scare off the ducks. LOL. She has no fear of the ducks that would waddle pretty close to her. She just kept squaking and clapping her hands in excitement.
Rachel was born August 31, 2004 with a unilateral cleft lip and palate. This blog follows Rachel's progress on the journey of repairs, her continued progress, and development into a young woman that brings many blessings.
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Rachel was a riot to watch. She was squaking and yelling. Frankly, I'm surprised she didn't scare off the ducks. LOL. She has no fear of the ducks that would waddle pretty close to her. She just kept squaking and clapping her hands in excitement.
Her observations were that Rachel is a little delayed in her receptive language. This means her ability to take in what she's being told, or being asked to do. And obviously she's delayed in her expressive language...her being able to verbalize or sign.
Here, Rachel sits...quietly...and breifly, looking around at where she could possibly go next.
One of the added touches at our place settings were the goodie bags placed on the girls chairs. Inside were things to keep them busy during the reception...a miniature My Little Pony, a slinky, a silly straw, some bracelets, and a Wooly Willy (you know the picture of the bald man and you use the black magnet dust to give him some hair and a beard). I was excited to see the Wooly Willy because we have something similar where you make pictures using a magnetic wand and magnet balls to make pictures and Rachel absoultely loves that thing. So she had fun with the Wooly Willy.
Rachel was all over the reception. She just kept walking around, checking things out. And when it came time to dance, the dance floor is where you could find Rachel! She was having a good ole time dancing around and being silly. She was hilarious to watch!
The appointment went well, once we were finally seen. We knew we would have to wait, in fact they called on Friday and moved our appointment from 1:00pm to 3:00pm, but it was well after 5:30pm before we were placed into a room. It was after 7:00pm before we even left the building. We saw a total of four doctors, the pediatrician, the speech therapist, the dentist, and the ENT. After already waiting for hours in the waiting room, and the waiting in between doctors coming into the room, Rachel had had enough. She kept pointing to her clothes and to the door, meaning she wanted to put her clothes on and leave. After daddy showing her how to use paper towels to create makeshift pants, LOL, she was trying to recreate what he had done.
Unlike at our last team appointment, our questions were few. And those resolved around her speech. For being 17 1/2 months old, Rachel's words are few. Granted she's only had a palate for a few short months now, but the words are still few. Our concerns were valid. The Speech Therapist felt she needed a full speech evaluation and more than likely therapy to follow. She will also have a hearing evaluation to make sure her speech hasn't been delayed due to any hearing loss. That's not really a concern of ours, but it is pretty routine to do a hearing test right about now. She's pretty behind in her speech development, but it's nothing that can't be corrected with therapy.
The pediatrician and ENT were pretty uneventful, both confirmed her ears look great and the tubes are still in place. The pediatrician got a good look at her palate repair, and so did we! Dr Martin did an awesome job on her palate repair. You would never know that her mouth was once a dark, deep, endless hole. Her palate looks perfectly normal except a straight line down the middle. The dentist took a look at her teeth (all 7 of them) and suggested that we get her established with a dentist to get her in the routine of being seen, etc.
Other than the issues with her speech and the recommendation to get established with a dentist, the appointment was pretty uneventful. I'm so glad to have been at today's appointment, at this point of having three surgeries behind us, than where we were at on September 27, 2004, at our very first appointment, just at the beginning of this journey.